Living with dementia

A dementia diagnosis can come as a shock, for the person and for everyone around them. You don't have to work it all out at once, and there is help.

“When my mum, Jean, was diagnosed with dementia at 82, I went to stay with her and my dad. Week by week she needed more encouragement with things like washing and personal care, and we decided it was time to find some help from outside the family.” — Martin, who started Carers & Cleaners. Read his story.

After a diagnosis

Someone with dementia should have a care plan, setting out what care they and the people who look after them might need, and naming a person to coordinate support. It should be reviewed at least once a year. Ask the GP or memory service about it.

Help from the council and the NHS

Money and legal matters

While they can still make their own decisions, it's a good idea to set up a power of attorney. Check benefits too: Attendance Allowance isn't means-tested, and dementia can mean a Council Tax discount. Simple steps like direct debits for regular bills can make day-to-day money easier.

What a carer can help with

Many people with mild to moderate dementia live well at home with the right support, and familiar surroundings can help. Simple changes help too: see making a home dementia-friendly. A carer can help with things like washing and dressing, meals, medicines reminders, getting out and about, and company. It can also give family carers time to rest.

A familiar face matters. If you can, find someone who can come regularly, and give them time to get to know the person.

Helplines

Find help near you All guides